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transpaoI'm usually pretty good at pain. and most people know I'm far from being a wuss or whiner when it comes to being in pain.but this joint pain is really getting to me.
When you step out of bed and nearly fall to the floor because the pain in your feet is so intense...
When even the simplest of movements that are so fucking normal turn excruciating...
When no one fucking knows what is wrong with you and there is nothing you can do about it...
When pretty much your only social outlet involves typing and it hurts intensely to type...
when it hurts to crochet, loom knit or play a video game and you simply start to sleep away the day because there seems to be nothing you can do without having to force yourself through the pain...
How do you manage?
I've been reading. RA negative inflammatory Arthritis, immune disorders, and things that can mimic RA. It turns out that one of the disease they mention is Lyme disease. I can't believe none of the docs I've brought this up with so far have bothered to mention that I've told them about my love of hiking. Sheeshe! But I'm definitely going to bring this up with the ruematologiest that has been nice enough to fit me in next week.
The Asmtha and Allergy guy I saw a couple weeks ago seems convinced it's some sort of immune disorder. Though in my reading today that doesn't necessarily make any since because my ANA is neg. Though that may be the next thing I look up. ANA neg immune disorders.
Please everyone that reads this whatever your belief system... please light your candles, think your thoughts, pray your prayers or whatever that they figure this out or I have some sort of miraculous permanent recovery... it's taking so much out of me and it's affecting every part of my life, with the most important things being my work and mood. loosing my job would mean no insurance and even more lack of answers. I pop OTC painkillers all the time now and still it only takes the edge off... usually I just have to push through it and mange ok now its only when I drop something or nearly fall over because of the pain that things get really complicated, but I'm only nearly 27 spending the rest of my life in excruciating pain... well lets just say I don't relish the thought.
When you step out of bed and nearly fall to the floor because the pain in your feet is so intense...
When even the simplest of movements that are so fucking normal turn excruciating...
When no one fucking knows what is wrong with you and there is nothing you can do about it...
When pretty much your only social outlet involves typing and it hurts intensely to type...
when it hurts to crochet, loom knit or play a video game and you simply start to sleep away the day because there seems to be nothing you can do without having to force yourself through the pain...
How do you manage?
I've been reading. RA negative inflammatory Arthritis, immune disorders, and things that can mimic RA. It turns out that one of the disease they mention is Lyme disease. I can't believe none of the docs I've brought this up with so far have bothered to mention that I've told them about my love of hiking. Sheeshe! But I'm definitely going to bring this up with the ruematologiest that has been nice enough to fit me in next week.
The Asmtha and Allergy guy I saw a couple weeks ago seems convinced it's some sort of immune disorder. Though in my reading today that doesn't necessarily make any since because my ANA is neg. Though that may be the next thing I look up. ANA neg immune disorders.
Please everyone that reads this whatever your belief system... please light your candles, think your thoughts, pray your prayers or whatever that they figure this out or I have some sort of miraculous permanent recovery... it's taking so much out of me and it's affecting every part of my life, with the most important things being my work and mood. loosing my job would mean no insurance and even more lack of answers. I pop OTC painkillers all the time now and still it only takes the edge off... usually I just have to push through it and mange ok now its only when I drop something or nearly fall over because of the pain that things get really complicated, but I'm only nearly 27 spending the rest of my life in excruciating pain... well lets just say I don't relish the thought.
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no subject
Date: 2008-10-05 02:48 am (UTC)no subject
Date: 2008-10-05 03:04 am (UTC)I went to see the A&A guy because I've had two episodes of facial swelling and hives within the past two months, and another mysterious rash that developed and went away. apparently I also have some asthma symptoms too, but that's besides the fact I think. He ran about a billion test... which I talked about in a post a week or so ago. I haven't gotten the results back yet... so maybe that will find something, but who knows.
I have taken another day off work on the 9th and I have an appointment scheduled with my gyn doc, a ruemie doc, and the A&A guy. Its killing my bank account but I'm determined to get something figured out. I'm going to try and get copies of the test that were run by the A&A guy before the 9th so I can take them with me to the other doctors, just in case they have pertinent info.
no subject
Date: 2008-10-05 03:07 am (UTC)